Not whether but how: the ethics and Language of reporting back individual results.

Publication Type:
Letter
Year of Publication:
Journal:
Environ Health
Date Published:
Abstract:

The ethical obligation of reporting back research results (RBRR) is established. Yet the ethical dimensions of how RBRR is implemented remain largely unexplored. The Environmental influences on Child Health Outcomes (ECHO) program has identified logistical challenges in RBRR, citing limited guidance resources as a key obstacle. The objective of this research was to characterize and assess ethical considerations for RBRR: (i) with or without clinical significance; (ii) within a pregnancy cohort, and; (iii) within a study population with diverse cultural and traditional contexts.

DOI:
10.1186/s12940-025-01224-0
PubMed ID:
41146215
PubMed Central ID:
PMC12560451
Funding Sources
UH3 OD023290
UH OD023290
P30 ES030287
R01 ES036256
P42 ES016465